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Tuesday, October 14, 2014

The New Normal, whether I want it or not

So here I am 15 months since I penned the last post.  I have been gone, if not in body - in spirit.  I willingly went into a drug induced fog, that took me forever to find my way out of.  Please understand that the drugs I refer to were all prescribed by my doctor of 10 years.  He was more than my doctor, he was a friend of ours, and god bless his heart, he apparently didn't feel that I deserved what I was handed and helped to numb my existence for a year.  It took an uncrazy, fleeting moment in my existence for me to realize this was not me, and not for me.  Like a kamikaze, I quit taking the antidepressants and pain pills that were so lavishly given to me, cold turkey.  I do not, repeat do not, recommend this for anyone.  Even though they were prescribed to me, and I only took them as I was instructed the effect was horrendous.  If you're ever faced with this dilemma, wean yourself off.  The nightmarish existence that I experienced for about 2 weeks was not deserved, but I guess I had to feel everything I was going through, to get my sanity back.  I almost died a few times, blood pressure bottomed out, insane delusions and the total lack of knowing that I was worth more than what I had gone through.  Who knew that a 50 something year old philanthropist could be turned into a drug addict, without even trying?  It was a long road back, not a journey that had me craving the pharmaceuticals that I had given up, but just getting my mind straight again.  Truth be told, I'm still working on it. 

Some of my family members took, real big, advantage of my situation.  Says volumes about them.  When I needed them more than any time in my life, they failed me.  Such a disappointment, and revelation.  I have become a bit jaded in my advancing years.  People talk about forgiveness, but I just can't.  I have successfully shut the door on those that were so miserable....but that doesn't mean that I don't feel the loss every single moment of my life.  A cross I just must bear if I want to have any kind of a future.  Something that I have learned through all of this...if you just disappear from people's lives, they will justify it, and eventually quit trying to figure out what is wrong and they never figure out it was they that were wrong. 

What I did realize is that I have to find me again.  I was once, a very independent, talented artist and writer.  It's a good foundation to build on.  In life I have had to change my paradigms a few times, but never so much as when I lost my mother, my father and then my husband, in such a short span of time.  It was as if my whole identity, the thing that made me who I am, was just wiped off the planet....and I was just a scared, empty shell.  Little by little I'm pulling from my foundation - taking a piece from here and a piece from there and I figure, eventually, I'll be okay once again.  It started with picking up a pencil and a sketch pad, moved to putting together some graphics, expanded to designing how I want the yard to morph into a yard art escape, and planning a make over of the house - nothing extravagant, just a paint palette and a very cool steampunk graphic to be painted.  One foot in front of the other.  Even thinking about joining the working world again - at 59 you'd think I would know what I want to be when I grow up - but I'm still not sure....I just know it has to be something I enjoy, or it's not worth doing. 

If someone were to ask me "If you could go back, and do one thing different, what would it be?"  I believe now that I should have been a lawyer, or at the very least - the best paralegal this side of the Pecos.  With my family, it really would have come in handy. 

So this is the plan for my "new normal"...there really isn't one, except to be kind to myself.  Hell, if no one else recognizes it...I do.  To lose your whole foundation to unexpected deaths is just so cruel.  My mom, my dad, my Joe - but when I'm at my lowest (yes, I still have those times) I think of one of the most beautiful women that I have met through this journey....we'll call her Minnie - she lost a son to this cruel disease and then her husband of forever so soon after.  With all of my mind boggling loss I cannot imagine losing one of our children to this.......We used to be very close, but I believe, except for a poke every now and then - we just don't know what to say to each other.  She knows I love her, and I know she loves me....and we also know that there is nothing to fix our broken hearts.  So we move along, blindly.......sometimes tripping, or even falling.....but it's time to pick yourself up, dust yourself off, and start all over again. 

....And Now the Epilogue

It's been quite awhile for me to get around to writing the epilogue to this journey.  With good reason, I suppose. 

We always knew there was a chance that we would not make it to transplant, but it is so hard to face up to that reality.  I could never imagine my life without my Joe, but here I am living it.

On April 3rd at approximately 3 am Joe, while hospitalized at the University of Washington Medical Center,  suffered a massive brain bleed on the right side.  Within the 45 minutes it took me to get to the hospital - his frontal lobe and left side also massively bled.  They gave me the news that Joe was brain dead and that there was no chance of a comeback.  Unless you have lived a similar situation you have no idea how devastating those words are.  You walk into your husband's room zombie-like, and you think "ok, jokes over, wake up, show me those beautiful blue eyes, tell me you love me, come back, oh please come back....And you think of his fist in the air years ago when we started this journey saying "I will", then "I'll try", but there is nothing - no fist - no words....just a respirator breathing for him.  And on April 4th he passed.

The next zombie like thing you do is go off to a room, by yourself, and begin the phone calls.  One at a time, one as heartbreaking as the other...you find yourself apologizing - "I'm so sorry"....like there was something you could have done to change the circumstances.  Then you go and take up your "place", right next to your husband as you have always done. 


I Jenny, take you Joe, to be my wedded husband. To have and to hold, from this day forward, for better, for worse, for richer, for poorer, in sickness or in health, to love and to cherish 'till death do us part. And hereto I pledge you my faithfulness. 



 So much has happened since that day, a few short months ago.  The burial of the cremains in the Boise, ID Veterans Cemetery, with full military honors (so moving).
 
The folding of the flag.

Presentation of the flag

Honorable Gun Salute

Playing Taps - so haunting

Our Children - Josh, Bobby, Jeremy, Kimmy and Molly

Presentation of Roses by family members


Our Grandchildren - Tyra, Matthew, Romie, Harlow and Matty
 
As you can see - it was really windy that day, and it was a very cold wind.  So the next few days I wasn't feeling well....quite a cough.  Got very sick and stuck myself in bed, until I decided to go see my Doctor.  Walking pneumonia - two weeks went by before I was able to do a thing, including getting out of bed.  Was suppose to be back in Washington working on my mom and dad's stuff so we can sell the house...waylaid.  After more than a month I was finally well enough to attempt the drive back...Had Kimmy's wedding to get to, back in Idaho, and needed to be well.  Continued my road back to health in WA, and then made it back to ID for the nuptials.  Joe was so looking forward to walking "his little girl" down the aisle.  It was hard for us all.  My brother, Mike Crouch, and our oldest son Bobby did the honors for Joe.  It was quite a darling spectacle seeing my 6'6" brother and 6'4" son coming down the aisle with our 5'1" daughter.  It was wonderful.                                                                                                                      
                                                

                             
Bobby danced with Kimmy to the song that Joe and she had picked out for their father/daughter dance, "My Little Girl", while a slideshow of Joe's and Kimmy's life together was shown.  I don't think there was a dry eye in the house - certainly not mine. 
 
I don't know how I've made it this far, and it hasn't been pretty.  The mind altering grief has taken me away from reality and I live life in a fog.  Months go by, and I have no idea how.  I have big life choices to make.....I don't know how it will be possible.
 
Author's note:  This blog entry was written in July of 2013, but I never published it.  It's time.....and then on to more of how you get through the most horrible times of your life.